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Patient Involvement and Education

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Patients as Members of the Team

Goal ImageNational Patient Safety Goal 13A

Sentinel Event Alert #33
Questions are the Answer
Including Patients in the Care Process
Empowering Patients and Families About Infection Control
Involving Patients in Stroke Care
Preventing Patient-Controlled Analgesia Overdose: Letting Eligible Patients Keep Control
Obtaining Informed Consent
Including Patients in the Care Process
Patient Inclusive Care: Encouraging Patients to be Active Participants in their Care
Including Patients in Hospital Management Decisions: Patients Become Partners in the Care Process
Commit to Patient Safety by Creating a Patient Safety Program
Patient-Inclusive Care: Encouraging Patients to be Active Participants in Their Care
Consumer Questions About Discharge Planning
Safety tips for Nova Scotians: Be involved in your care
Listening and Learning: ACT Health Consumer Feedback Standards
Consumer feedback standards service improvement tool
The LVHHN Patient Safety Video: Patients as Partners in Safe Care Delivery
Focus on Five: Five Steps You can Take to Engage Your Patients in Safety
Your healthcare Be Involved
10 tips for safer health care
Consumer feedback standards service improvement tool
Listening and Learning: ACT Health Consumer Feedback Standards
Massachusetts Coalition: Patient MED LIST
Massachusetts Coalition: Easy Instructions for Patients - Know Your Medications for Better Health
Become a Partner in Health Care with the Med Form
National Consumers League: SOS Rx (#3)
Speak Up : Prevent Errors in your Care
Bibliography for Advancing Patient and Family Centered Care
Partnering for Patient Empowerment Through Community Awareness (PPECA), a hospital-library collaborative program
AARP Guide : How to Be Drug Smart
Personal Medication Information Management
Engaging patients and families
Improving Self-Medication Safety in a Nursing Home Care Setting
Reducing Wrong-Patient Events
JC Guide to Patient and Family Education (33)
Talking to Consumers about HealthCare Quality
Medication Station: Educate Your Patients About Safe Medication Use

Informed Consent

Australia: Consent to Medical Treatment: Your Rights
Calvary Healthcare Consent Policy
Calvary Healthcare Consent Flowchart
Obtaining Informed Consent
Including Patients in the Care Process

Disclosure of Outcomes/Errors

University of Michigan Health System Patient Safety Toolkit: Disclosure Chapter
Disclosure of unanticipated events: Creating an effective patient communication policy
Australian Council for Safety and Quality in Health Care: Open Disclosure Education and Organisational Support Package
Canadian Patient Safety Institute: Draft National Guidelines for the Disclosure of Adverse Events
Crafting an Effective Apology: What Clinicians Need to Know
The Sorry Works! Coalition: Making the Case for Full Disclosure
A Case of Failing to Apologize
Advocate Lutheran General Hospital Disclosure Brochure
Partnering with Families: Disclosure and Trust Demonstrated strategy and results to improve care delivery and patient satisfaction through enhanced patient-physician communication
Perspective on Disclosure of Unanticipated Outcome Information
Disclosure of Unanticipated Events: Effective Patient Communication Policy
Being Open : Communicating incidents with Patients and their Carers
Strategies for Improving Medical Liability System and Preventing Injuries
Sorry Works!
Unanticipated harm to patients: Deciding when to disclose outcomes
Disclosing adverse events to patients
Role-playing case simulations: A tool to improve communication and enhance safety

Support for Patient and Families

The Josie King Foundation
CAPS: Consumers Advancing Patient Safety
Irish Patients' Association
Health Consumers Council
European Patients Forum
Medically Induced Trauma Support Services
PULSE
P.I.C.K. - Parents of Infants and Children with Kernicterus
Consumers Advancing Patient Safety

Language Barriers

Educating Staff About Providing Culturally and Linguistically Appropriate Health Care
Are Language Barriers Associated With Serious Medical Events in Hospitalized Pediatric Patients?
Overcoming language barriers in HealthCare
Speaking the Language of Care: Language Barriers to Hospital Access
JC Guide to Patient and Family Education (25)

Health Literacy

Ask Me 3
Educating Staff About Providing Culturally and Linguistically Appropriate Health Care
The ABC's of Health Literacy
Health Literacy, Medication Errors, and Health Outcomes: Is There a Relationship?
Communication Critical Test Results, Safe Practice Recommendations
Improving Cultural Competency in Pediatric Care
National Patient Safety Education Framework
Providers Guide to Quality and Culture
Spanish Language Patient Medication Management Tool
Strategies for Leadership: Patient and Family Centered Care
JC Guide to Patient and Family Education (18)

Personal Health Records

Online Personal Health Records
Personal Medication Information Management
Become a Partner in Health Care with the Med Form
Medem's - iHealth Record
Downloadable Forms
Joint Commission Resources: Your Health Journal
Universal Medication Form
What I need to know before I go home

Disease Specific Self-Care 

Diabetes Initiative - A National Program
New Health Partnerships

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